One face in 30,000 with CF

One face in 30,000 with CF
One of the many faces of Cystic Fibrosis

Saturday, June 25, 2011

Sleeping baby

Zoey hates her picture being taken now. I can only get pictures of her sleeping, and off guard, or hiding under a giant bumblebee hat.

Any advice on potty training. Before she turned two she was at least interested and even went on the "big girl" potty after dinner. Now she wants nothing to do with it.

I am enjoying the stay at home mom gig right now. I feel like I am getting to know my child again. She LOVES outside. Even though I only understand about 15% of what she is saying, we can sit on the back step together and have the most wonderful chats. Of course she is speaking a different language but it is still fun, and relaxing. And I love every minute of being home with her. I often times let her go outside with shoes on in the back yard, only to check on her 2 minutes later and she is walking bare foot in the grass. She hates having anything touch her feet, shoes, socks, blankets, the list goes on and on.

She is developing a cough. I don't know if it is allergies or a cold. I want to say allergies because her nose is just a mess and it is allergy season. However, my husband has strep throat so it could be a cold. If it is I hope it is just a mild one with no damage to the lungs! I know it could be an irrational fear but the CF clinic has been mentioning another hospital stay again. I have been trying to hold off and see if she gets better. I just don't want her to be in the hospital again, we have not been able to make it a year between visits. I will take her if I need to, she comes first, however I don't think she has been really bad. Since we put her back on TOBI her oxygen level went from 91 to 95 so we figured she just got the PA back. If this thing she has is a true cold, I don't think the clinic will let me hold off on the hopital any longer. We shall see. I am going to get her throat checked on Monday, she has been sticking her fingers in her throat like it is hurting her. Such as life, we live in the "strep belt". I had to get my tonsils taken out after my first year of teaching because I got strep throat every other week.





She loves her pool!!! My labs like to lay in it with her, they get so hot. LOL

Sunday, June 19, 2011

Terrible Two Tales

Sunday, laundry day. I had separated all of the clothing into different colors, started a load with the help of Zoey then went and sat down to take a break. In about 2 minutes Zoey brought a laundry basket into the living room and put all of the clothing back in the basket. Then she gave me a high five for doing it. She was so proud to be "helping". Oh well, I guess I will sort the clothing again later.



Wednesday, June 15, 2011

New start

I am feeling a little bit lost. Me taking a leave from my job was the right thing to do for me and for my baby but I spent a lot of time in college to become a teacher, then I have taught for 10 years.....now what? I do not know where to go from here! I have always had a goal in mind, college, job, masters and job, improve my teaching...... I feel lost without a goal in mind. My goal will be....keeping my MS in remission and keeping Zoey out of the hospital for longer than 9 months. I think I need a project.

In the meantime my husband is working hard to find a job, they laid him off from his last one. He needs to find a job with insurance or I am going to have to go back to work in the fall. I do not want to do that. Saying goodbye to the kids was hard enough, having to do it again after teaching another year would just be too hard. Plus...I need this time to get my health back, I need to get off the steroids that help with my MS and lose the weight I gained while on the steroids...I am talking almost 50 pounds I gained and I am NOT happy about it and NOT comfortable in my own skin anymore.

I have started weight watchers and I am doing ok on it, losing 2 pounds once a week, I have only been on it two weeks. I just wish it was coming off faster but I know slower is better for your health and keeps the weight off. I am also going for walks twice a day and getting on my elliptical trainer. This was all things I did not have time for before, it was all I could do to come home from work, cook dinner, dishes, bath for Zoey, breathing treatment. When my husband was working it was at night so he was not there to give me a break so I can work out. Now I have time and I am loving it, I feel like I am fighting my MS by getting strength back in my legs, and walking. I can now walk for 30 minutes straight without losing the feeling in my legs. Now most people can walk for 30 minutes without a problem. For me it has been hard but I got there. My legs have lost strength and of course my extra 50 pounds I am carrying around. But I can do it now. I beat you MS!!!

My husband is having no luck finding a job here so he is now looking in a bigger city about an hour away from us. So on top of everything else we may have to find a way to sell our house and relocate to Green River Wyoming. It is not a huge deal because that is where I grew up and where my mom is, so we would have family support. However it is kind of a big deal I like where I am and I have friends here and my students are here, where I was hoping to run into them every once in awhile so I can still watch them grow up.

I have also been getting to know my daughter a little bit better. When she spent weekdays in daycare I missed a lot. My child is a clown, I see her being the class clown in school. She is so funny and she has the cutest expressions with her eyes. She talks non stop even though I only understand about 10% of it. She likes to tease our dogs and bounce on her daddy. And...she LOVES outside. I keep saying if we let her she would live in our back yard. She has learned to open the back door and just go out, which is kind of scary but not really we have a fenced in yard so she can't go anywhere
other than to her swing set. She also HATES shoes and socks. I cannot keep them on her. I ran errands with her today and we made two stops, both times I had to put her shoes back on. I put shoes on before she goes outside only to see her running in the grass bare foot. While Zoey is in the backyard she has no problem going in the dog kennel and playing in the water. I cannot keep her out of water, if it is in sight she will be in it. I went and got her a little wading pool this morning. It is inflatable and only holds about 2 inches of water, but it has a slide and a palm tree that sits in the middle that has water coming out of the top like a water fall. It is cute. She did not get a chance to use it today I am hoping it will be warm enough tomorrow but we will see. We have yet to see summer weather here, but thankfully it has gone to spring weather here, I am not waking up to snow anymore. I cannot wait to see what else Zoey is going to hit me with, she is a funny girl. She has her favorite blankie, and every time so goes outside she grabs it and says come on blankie. She also says that to her Micky Mouse. I often time see her in the backyard dragging the blanket like Linus in Charlie brown, through the grass, and holding her Mickey Mouse. Today she also grabbed her inflatable duck that we give her baths in and took it outside.

 Daddy being silly and Zoey screaming because Daddy had the nerve to tell her no to eating dog food.
The kitchen table is the perfect place to sit, I will just knock over the flowers first. She is also playing with the birthday card I got for my niece, it is a singing card. Sienna will never get this card, Zoey decided it was hers, played it all day, danced to it, and chewed on it.

Friday, June 10, 2011

Museum Pictures

We went to a children's museum a couple of weeks ago, here are some pictures.







Thursday, June 9, 2011

Terrible Two Tales

Zoey came up to me the other day, pointed her finger at me and said "Mickey, NOW" She apparently wanted to watch Mickey Mouse. Now a sane Mommy would not let her child order her around. I however, am not a sane mommy, I laughed because I could not help it and turned on Mickey Mouse for her.

Zoey's Daddy would not let her play in the dog food while the dogs were eating. She got mad at him ran to me in tears and sad "Dadda Bad" Again I just laughed. She does not understand why we won't let her eat the dog food.