One face in 30,000 with CF

One face in 30,000 with CF
One of the many faces of Cystic Fibrosis

Friday, August 19, 2011

Odds and Ends

This post is way overdue. Zoey got her scope today. They did not find anything. I don't know how to take that. There is no reason for her to not be eating, or choking like she is. Well...the choking the doctor has an idea. He thinks she has a delayed swallow. I am not sure exactly what that means but the outcome is choking. He said CF kids don't eat due to what they go through in the beginning, before meds and before everything gets under control. He also said this means extensive work with a speech therapist who focuses on feeding issues. So all in all it went well. Zoey is such a good child, she went and hung out in a room in the hospital like no big deal. Walked back to the procedure room with me, let me hold her with a mask on with the meds to help her fall asleep, and was out. Then she woke up and went on with her day, nooo problem. I feel so blessed to have such a happy laid back child. She has been through so much already and she is still happy and does not let anything phase her.

On a lighter note. I am attaching pictures of our favorite thing to do during the summer. Take the dogs to the lake to swim. It is sooo funny. Zoey just laughs and laughs watching them. This time Zoey, my child with no fear, went into the lake about knee deep and played forever. When we told her it was time to go she cried.

Back to the dogs. Ella, the prima donna, is a lab mix. Aries, is a lab/Rottweiler mix. Aries loves to swim, she would swim across to the other side of the lake if we let her. Ella, likes to jump in the water and walk in it but when she gets to swimming she looks like she is drowning and comes back to where she can touch. It is so funny she can swim but she keeps her front paws out of the water so she splashes around like a fish out of water. I keep telling her labs are supposed to swim well so she is a bad lab. She still has fun though. Aries swims so smoothly, she swims around the lake like an alligator, just smooth. It is funny to see the differences between the two dogs. here are some pictures.

 Ella splashing around like a fish out of water, and Aries trying to cross the lake.
 I'm outta here!
 Both girls having the time of their lives.
 Ella going out to meet Aries and maybe steal the ball.
 This is about 10 minutes before she went into the water.

Ready to go to lake, with the shades.

Monday, August 8, 2011

The Big Scare

I had the biggest scare ever last week. On Thursday I was traveling to a family reunion with my daughter and two nieces. It was a long drive for the girls but we were doing good and having a good time. Then... we hit a two lane highway with road construction and got stopped for about twenty minutes. The girls decided to have a snack, including Zoey. They were eating fruit snacks. Next thing I know we are on our way. Because we were stopped so long we had a long line of cars behind us. All of a sudden my sweet baby girl starts choking. I look in the mirror and she is turning purple. I did not know what to do, there was nowhere to pull over. I finally just pulled to the side of the road and hoped and prayed cars would go around us which they did. However it would have been hard to get Zoey out of the car to do anything because the risk of getting hit by a car would be very real, there was no shoulder we were halfway in the dirt and halfway on the road with angry drivers going around me. I feel so blessed to have had my niece Tailor there with me. Before I could even get out of the car Tailor who is twelve climbed in the back seat and stuck her finger down Zoey's throat and pulled it out. She was so calm. It seemed like she just knew what to do, and she has had no CPR training. I cannot express how grate full I am for her and her calm presence in the car. She saved Zoey's life and I cannot express how that feels. She is a sweet amazing little girl.

We now have new rules in the eating, luckily we are done with our summer travels so that will not be an issue any more.

Zoey is choking more and more and I am so scared. She is getting a scope on the 19th and that will be one of the things he is looking at, why does she choke so easy. I hope he can find something to help us. I also went into my doctor today to fill out my work disability paperwork but I also made him show me how to deal with a choking child. I know what to do with an adult but not Zoey's size. I now know and hope and pray I won't have to use it. Zoey has been through enough this choking thing is just about putting me over the edge. I am still really nervous and scared over what happened five days ago. She is fine and it did not phase her but it phased me.

 Zoey chillin in the car after about 5 hours into our trip.
Zoey with her cousins Sienna and Tailor. Tailor is the tall one and is Zoey's guardian angel.