One face in 30,000 with CF

One face in 30,000 with CF
One of the many faces of Cystic Fibrosis

Friday, August 19, 2011

Odds and Ends

This post is way overdue. Zoey got her scope today. They did not find anything. I don't know how to take that. There is no reason for her to not be eating, or choking like she is. Well...the choking the doctor has an idea. He thinks she has a delayed swallow. I am not sure exactly what that means but the outcome is choking. He said CF kids don't eat due to what they go through in the beginning, before meds and before everything gets under control. He also said this means extensive work with a speech therapist who focuses on feeding issues. So all in all it went well. Zoey is such a good child, she went and hung out in a room in the hospital like no big deal. Walked back to the procedure room with me, let me hold her with a mask on with the meds to help her fall asleep, and was out. Then she woke up and went on with her day, nooo problem. I feel so blessed to have such a happy laid back child. She has been through so much already and she is still happy and does not let anything phase her.

On a lighter note. I am attaching pictures of our favorite thing to do during the summer. Take the dogs to the lake to swim. It is sooo funny. Zoey just laughs and laughs watching them. This time Zoey, my child with no fear, went into the lake about knee deep and played forever. When we told her it was time to go she cried.

Back to the dogs. Ella, the prima donna, is a lab mix. Aries, is a lab/Rottweiler mix. Aries loves to swim, she would swim across to the other side of the lake if we let her. Ella, likes to jump in the water and walk in it but when she gets to swimming she looks like she is drowning and comes back to where she can touch. It is so funny she can swim but she keeps her front paws out of the water so she splashes around like a fish out of water. I keep telling her labs are supposed to swim well so she is a bad lab. She still has fun though. Aries swims so smoothly, she swims around the lake like an alligator, just smooth. It is funny to see the differences between the two dogs. here are some pictures.

 Ella splashing around like a fish out of water, and Aries trying to cross the lake.
 I'm outta here!
 Both girls having the time of their lives.
 Ella going out to meet Aries and maybe steal the ball.
 This is about 10 minutes before she went into the water.

Ready to go to lake, with the shades.


  1. She is such a BIG girl now. Cannot believe how old she is! Glad you got some answers and hope the speech therapy will help her out. Hope you are enjoying your summer...

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  3. I wish you all the best Kort (sorry previous comment I wrote Sandy as had read her comment before I posted, apologies, my brain is not functioning properly at the mo!!)
    Feeding problems are difficult but I know you guys can overcome this.

    I have loads and loads of info and tips on things to try if you want me to pass on to you. Collected an awful lot of knowledge over three and a half years.

    The pictures are amazing and your dogs are lovely!!

    LOVE the last pic of Zoey chilling out in the car in her shades, brilliant!!

    Take care and hope you are doing well at the moment?